| Version | 1.01 |
|---|---|
| Publisher | The Hospital for Sick Children |
| Release date | Jan 5, 2014 |
| Date added | Nov 1, 2013 |
| Os requirements | iOS |
| Requirements | Compatible with iPod Touch (3rd generation or later, iPhone 3Gs, iPhone 4, iPad. iTunes account required. |
| Total downloads | 0 |
| Price | Free |
Description
In order to address the current lack of outcome measures, we developed iscorEB-instrument for scoring clinical outcomes of research for Epidermolysis Bullosathat quantifies the disease severity from both, clinician and patient/family perspective. The paper version of the tool was developed into a mobile application for multiple digital platforms. iscorEB can be used for research purposes or in regular clinical practice to monitor disease progression. Patients can use the patient only sub score by themselves to monitor changes over time.
